tag:blogger.com,1999:blog-8512094385883127902.post230330448506509441..comments2024-02-04T23:52:15.227-07:00Comments on From This Point. Forward.: Arthritis Patients Who Rely on Medicare~Mariah~http://www.blogger.com/profile/18167493614638596254noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8512094385883127902.post-27580088587741379232012-02-06T09:40:45.114-07:002012-02-06T09:40:45.114-07:00LESLIE: I'm really glad you sent the letter! I...LESLIE: I'm really glad you sent the letter! I agree that the Arthritis Foundation is sometimes not as clear as they could be in differentiating between OA and inflammatory types of arthritis - it's something I've been complaining about or a couple of years now, especially during "Arthritis Awareness Month" (http://fromthispoint-forward.blogspot.com/2011/05/foundation-frustration.html). <br /><br />I can tell you that the AF actually DOES do a lot of work for inflammatory arthritis - particularly as it concerns the JA kids (which really helps all of us). I still think they could do a better job at "awareness" that arthritis is more than just OA - but the good news is that they will actually listen to constructive criticism if you give it to them. One year I got them to change their whole marketing of a webpage by pointing out that the webpage was OA-focused yet they were marketing it to my blog. And, as I get more involved there, I will totally continue to push this agenda!!~Mariah~https://www.blogger.com/profile/18167493614638596254noreply@blogger.comtag:blogger.com,1999:blog-8512094385883127902.post-29238855104492443922012-02-05T06:59:57.721-07:002012-02-05T06:59:57.721-07:00Mariah, Yes, I did send a letter via email to my r...Mariah, Yes, I did send a letter via email to my rep. and was glad to see that it did talk about the high cost of meds for inflammatory arthritis. Sometimes the arthritis org annoys me the way it fails to differentiate the two but they do a lot of good too. Enjoying your story and wishing you the best for you and your little one to come!Lesliehttps://www.blogger.com/profile/17639790459615698073noreply@blogger.comtag:blogger.com,1999:blog-8512094385883127902.post-39436094046422416672012-02-03T08:56:37.010-07:002012-02-03T08:56:37.010-07:00LESLIE: Of course! I think the more recognition we...LESLIE: Of course! I think the more recognition we can get for any type of arthritis in Congress, the better off we will all be! I hope you took a minute to send your own Representative a letter - they need our input by the end of February or it will be too late!~Mariah~https://www.blogger.com/profile/18167493614638596254noreply@blogger.comtag:blogger.com,1999:blog-8512094385883127902.post-5988746997822945592012-02-03T05:14:44.927-07:002012-02-03T05:14:44.927-07:00Thanks for being an advocate! I'm 58 but worry...Thanks for being an advocate! I'm 58 but worry how in the heck I am going to afford these drugs when I retire - can I afford to retire? But I know with RA I can't keep working for too much longer either. It's very scary!Lesliehttps://www.blogger.com/profile/17639790459615698073noreply@blogger.com