Some of you may have noticed that last Friday came and went without my usual Facing Forward feature.
The reason is that I've decided it is finally time to retire the series
and move on to something else (mainly my work on the new Mamas Facing Forward website!!)
But
before I move on completely, I wanted to take a minute to reflect back
on the last two and a half years spent interviewing individuals living
with various chronic illnesses. The Facing Forward series was intended
to share the lives of people living with invisible chronic illnesses. In
addition to spreading awareness, I wanted to help all of us see how we
are similar and how we are different - and to remind everyone to keep
moving forward, because none of us are alone!
Since my very first interview published on March 8, 2015 (my own!),
the series has featured over 100 other individuals living with invisible
chronic illnesses - as well as a handful of caregivers for children or
spouses living with chronic illnesses. These individuals represented more than 110
different diseases and conditions, including (but not at all limited
to):
ankylosing
spondylitis (AS), Celiac disease, COPD, Ehlers Danlos syndrome,
endometriosis,
fibromyalgia, Hashimotos thyroiditis, HIV, juvenile idiopathic arthritis
(JIA),
lupus (SLE), lyme disease, myalgic encephalopathy (ME, formerly known as
chronic fatigue syndrome or CFS), postural orthostatic tachycardia
syndrome
(POTS), psoriasis, psoriatic arthritis, Raynaud’s disease, rheumatoid
arthritis
(RA), scleroderma, Sjogren’s syndrome, Type 1 diabetes, Type 2 diabetes,
and
ulcerative colitis. The series also touched on many co-morbid conditions
that are often present with chronic illness, such as anxiety,
depression, or issues with sleep.
Despite
the fact that more than 100 different people answered the same set of questions, I
think what surprised me most were the underlying
themes of how we all we all work to keep facing forward, in spite of
whatever our personal health issues may be. While most of us agree that it is
important to give recognition to feelings of grief or depression, we
also tend to make a real effort to focus on the positive aspects of life
and practice gratitude, mindfulness, and thankfulness as much as we
can. Our families, spouses, children, friends, pets, and loved ones also help us face each new day.
Many of us also find
support by connecting with others who are living with the same or similar illnesses -
as well as personally benefiting from advocacy work and providing much-needed support to each other. It
is absolutely no easy task to keep facing forward every single day
while living with a chronic illness, but I think the overall lesson to
be learned here is that we are stronger if we work together - lending a
hand to those of us who are struggling more at any given time.
To
everyone who participated in this series over the last two and a half years, I want to offer my most heartfelt thanks for helping to share the importance of continuing to face forward!!
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