|Arthritis Foundation Patient Partners getting to work at ACR!|
I'm pleased to share that there were multiple sessions at ACR this year focusing on issues of reproductive health for rheumatic disease patients - many more than in previous years! I will have some detailed articles about some of those sessions in the coming weeks. In the meantime, I wanted to share a just a little bit about the experiences of patients at ACR this year.
The Arthritis Foundation had a booth in the exhibit hall at ACR featuring posters from their patient partners - to help conference attendees understand the importance of the patient perspective and the real human impact of rheumatic diseases. In my poster, I shared the impact that rheumatoid arthritis has had on my family - and on the process of starting my family.
|At the Arthritis Foundation booth in the Exhibit Hall at ACR|
|My poster at the Arthritis Foundation booth in the Exhibit Hall at ACR|
The Arthritis Foundation blog published several articles featuring the perspectives of their Patient Partners at ACR this year. You can find them here:
- Elevating the Patient Voice
- Raising the Patient Voice in the Military
- November 11: Daily Dose (This one includes some of my insight on the session: "Transform SLE Pregnancies: Prepared Providers, Empowered Patients")
- November 12: Daily Dose
- November 13: Daily Dose
|With Linnette Dyer at the MotherToBaby booth in the Exhibit Hall at ACR.|
Lastly, while I was at ACR I had the opportunity to record a podcast with the International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA). The podcast focused on society's expectations for moms and the importance of pregnancy planning when living with a chronic illness - and how medical providers can help with this process. I'll be sure to share more when the podcast goes live!
|Recording the AiArthritis Voices 360 Podcast with Tiffany Westrich-Robertson and Deb Constein of the IFAA and Linette Dyer of MotherToBaby|
This information is brought to you by Mamas Facing Forward and is not sponsored by, nor a part of, the American College of Rheumatology.