Showing posts with label Fatigue. Show all posts
Showing posts with label Fatigue. Show all posts

Wednesday, February 21, 2018

Fitness for Fatigue

We’ve all heard it over and over (and over and over) again: it’s so important for people living with RA to exercise. Physical fitness can be extremely useful in managing many of the symptoms that come with RA, including fatigue. But does anyone else think this advice is easier to hear than actually follow?

Monday, July 24, 2017

The Importance of Addressing Pain and Fatigue

A new study suggests that it might be worthwhile for doctors to monitor and address pain and fatigue in addition to and independently of disease activity. Hopefully, more research will continue to take a patient-centric approach to understanding the ways RA truly impacts us.

Saturday, May 27, 2017

Misconceptions About Living With RA

May is Arthritis Awareness Month - so I've contributed to this RheumatoidArthritis.net video discussing common RA misconceptions

What misconceptions about living with RA have you encountered?

Tuesday, April 18, 2017

May I Have A Prescription for Patience, Please?

Living with a chronic illness necessarily means that you aren’t a stranger to doctors, nurses, needles, X-rays, procedures, etc. However, simply having an abundance of experience doesn’t mean it is always easy to interact with medical providers – especially in situations where you don’t feel well. 

Wednesday, March 1, 2017

“Supporting Fatigue” at the 2016 American College of Rheumatology Annual Meeting

While a 2004 study showed that 65% of patients prioritized fatigue, Dr. Hewlett pointed out that doctors too often focus on pain and ignore fatigue. This year a session focusing specifically on the issue of fatigue and how doctors can help their patients better manage it was hosted at the American College of Rheumatology Annual Meeting.

Wednesday, October 12, 2016

How to Manage Rheumatoid Arthritis and Stress

Although researchers still don’t fully understand the precise connection, a 2010 review of 16 studies published in the journal Arthritis Research & Therapy concluded that there is enough evidence to support the belief that stress likely plays a role in triggering RA flares or worsening RA symptoms. This is certainly something I can confirm from personal experience!

Being stressed seems to trigger an endless cycle: stress makes you feel crummy, which generates additional stress, which only makes you feel worse. For this reason, it is especially important that people living with RA have tools for dealing with stress.

Wednesday, May 11, 2016

Our Favorite Apps!

I’ve been threatening to do this for a long time and I finally got around to it! Here’s a list of our favorite apps – because guess what? Sometimes mama needs a break!!!

A good many of these apps are free! As for the ones that cost a few dollars, we certainly didn’t pay for all of them. Many we got for free through Starbucks or AppGratis or similar promotions. But, in general, I think most of these are worth the money OR they offer enough of a free demo to be entertaining for free.

[NOTE: Every app marked ** can be played on the first generation iPad with the old operating system!!]

For babies:
·      Music Box – by Sago Mini ($2.99) **

For toddlers:
·      ABC Train – by Knox Apps (free) **
·      Friends – by Sago Mini (free) **
·      Lotto matching – by Tiny Hands (first few levels free; unlock $3.99) **
·      Towers 1 – by Tiny Hands (first few levels free; unlock $3.99) **
·      Towers 2 – by Tiny Hands (first few levels free; unlock $3.99) **
·      First Words 1 – by Tiny Hands (first few levels free; unlock $3.99) **
·      First Words 2 – by Tiny Hands (first few levels free; unlock $3.99) **
·      What’s my Pair 1 – by Tiny Hands (first few levels free; unlock $3.99) **
·      What’s my Pair 2 – by Tiny Hands (first few levels free; unlock $3.99) **
·      Sorting 1 – by Tiny Hands (first few levels free; unlock $3.99) **
·      Sorting 2 – by Tiny Hands (first few levels free; unlock $3.99) **
·      Trucks – by Duck Duck Moose ($2.99) **
·      Pepi Tree – by Pepi Play ($2.99) **

For preschoolers :
·      Connect the dots – by Tiny Hands (first few levels free; unlock $2.99) **
·      Sorting 3 – by Tiny Hands (first few levels free; unlock $3.99) **
·      What's my Pair 3 – by Tiny Hands (first few levels free; unlock $3.99) **
·      Town Center – by Tiny Hands (first few levels free; unlock $3.99) **
·      Raccoon Treehouse – by Tiny Hands (first few levels free; unlock $4.99) **
·      Endless Reader – by Originator (first few levels free; starter pack $5.99) **
·      Endless 123 – by Originator (first few levels free; starter pack $6.99) **
·      Endless Wordplay – by Originator (first few levels free; starter pack $6.99)
·      Build A Truck – by Duck Duck Moose ($1.99) **
·      Monkey Preschool Lunchbox ($1.99) **
·      More Trucks – by Duck Duck Moose ($2.99) **
·      Toca Life: Town – by Toca Boca ($2.99) **
·      Toca Kitchen – by Toca Boca ($2.99) **
·      ABC Food – by Peapod Labs ($2.99) **
·      Easy Music – by Edoki Academy ($3.99)

Any Age:
·      Kids Doodle – by Bejoy Mobile (free) **
·      Balls – by iotic (free)
·      BoomKLAKers – by Funky Bots ($1.99) **

Tuesday, May 10, 2016

What Exactly is Arthritis? Let’s Set The Record Straight!

May is arthritis awareness month - the perfect time to set the record straight that the word arthritis is used to refer to more than 100 different diseases and conditions that destroy joints, bones, muscles, cartilage, and other tissue.

Monday, March 28, 2016

How to Improve Intimacy with Chronic Illness

If your health has had a negative impact on your sex life, you are not alone. Many factors can impact intimacy – such as pain, fatigue, mood, body image, and more. 

Check out my newest guest post for Mango Health! I was very excited that Mango Health was willing to let me cover this subject - one that is so rarely discussed but can have such a major impact on our quality of life!

Tuesday, January 26, 2016

Six Chicken Freezer Crockpot Meals

Being a mom is hectic. Living with a chronic illness is exhausting. When you combine the two, sometimes the idea of getting dinner on the table in the evening feels monumental. Those are the days where I've grown to love my deep freezer and my crockpot. On a day when I am feeling decent and have a bit of extra energy, I'll prepare and freeze a batch of meals. Then, on days when I'm short on energy or need a break from cooking, all I have to do is pop the meal in the crockpot and dinner is ready!

If you haven't tried freezer/crockpot cooking yet, I highly recommend it and I can offer you a simple starting point. A good friend of mine is about to have her second baby, but since we live in different states I couldn't help her prep food before the baby's arrival. Instead, I wrote up this shopping list and instructions to make it as easy as humanly possible to get six different chicken crockpot meals prepared and frozen. Now my friend will have these meals on hand for after her baby is born!

While these meals do require you to prepare rice or noodles and possibly a steamed veggie on the day you serve it, that is a lot less effort than preparing a whole meal! And the glorious part of this particular batch cook is that it is really simple and streamlined - after I got all the ingredients it took me less than 40 minutes to prep six different meals, despite arthritis hands during chopping! I thought some of you might also be interested in trying it, so I'm sharing the shopping list and instructions below.  You could always double it and end up with 12 meals too! 

Also (and here's an organized nerd alert here, guys!) I keep a list of what I currently have in my freezer on my phone - so that anytime I'm trying to figure out what to do for dinner I can just check the list. Otherwise stuff would get lost in the freezer forever - especially the chest freezer! I like to include cooking time and serving suggestions right on the list, so I always know how much effort my choice will take in advance.

Six Chicken Freezer Crockpot Meals

Shopping List:

Meat:
-       12-18 boneless skinless chicken breasts (since 2 big breasts is generally enough to feed my family, the six-pack of chicken breasts they carry at Costco was perfect for this batch cook!)

Dairy:
-       cream cheese (8 oz)

Produce:
-       2 red bell peppers
-       1 orange bell pepper
-       2 sweet onions
-       1 zucchini
-       baby carrots (2 cups)
-       2 cloves of garlic
-       lemon juice

Baking Goods:
-       cornstarch (1-2 tbsp)
-       white sugar (1/4 cup)

Canned & Jar Goods:
-       1 can large pineapple chunks in pineapple juice
-       1 jar spaghetti sauce
-       1 can cream of chicken soup
-       orange juice concentrate (8 oz)

Oils & Condiments:
-       ketchup (1/4 cup)
-       olive oil (1/2 cup)
-       white vinegar (1/2 cup)
-       honey (1 cup)
-       soy sauce (10 tbsp)

Spices & Seasonings:
-       1 packet dry Italian Seasoning
-       Black pepper
-       Garlic powder
-       Red pepper flakes
-       Salt


Directions:

(1)  Get six gallon-sized freezer bags.
(2)  Label each bag with recipe name (and, if you want, cooking instructions).
(3)  Trim any fat off chicken breasts and place 2-3 in each gallon-sized freezer bag.
(4)  Chop/dice produce (zucchini, bell peppers, onions, garlic).
(5)  Place listed ingredients into labeled gallon-sized freezer bag.
(6)  Get out as much air as you can before you seal the bag.
(7)  Lay flat to freeze to save space in freezer (but make sure the outside of the bags are dry, otherwise they will stick to each other, tear, and then leak).
(8)  When ready to use, thaw in the fridge overnight (place in bowl or crock pot to avoid any issues with leaking as it thaws).
(9)  Individual cooking times and serving suggestions in each recipe.


Recipe 1: Chicken Cacciatore:

In freezer bag:
-       2-3 chicken breasts
-       all of the chopped zucchini
-       half of the chopped red bell pepper
-       half of the chopped onion
-       1 jar spaghetti sauce

Cook:
-       On low for 6-8 hours

Serving ideas:
-       Over spaghetti noodles
-       Over baked spaghetti squash
-       Over quinoa
-       Over couscous


Recipe 2: Creamy Italian Chicken:

In freezer bag:
-       2-3 chicken breasts
-       Mix: 8 oz softened cream cheese, cream of chicken soup, dry packet of Italian seasonings in bowl; then pour over chicken in bag

Cook:
-       On low for 4-6 hours

Serving ideas:
-       Over rice
-       Over quinoa
-       With broccoli, cauliflower, or other steamed vegetable


Recipe 3: Hawaiian Chicken

In freezer bag:
-       2-3 chicken breasts
-       all of the chopped orange bell pepper
-       the rest of the chopped red bell pepper
-       half of the remaining chopped onion (leave some for the next recipe)
-       ½ can large pineapple chunks
-       ½ cup pineapple juice
-       ¼ cup white sugar
-       ½ cup white vinegar
-       1 tsp garlic powder
-       2 tbsp soy sauce

Cook:
-       On low for 4 hours

Serving ideas:
-       Over rice
-       With broccoli or other steamed vegetable


Recipe 4: Honey Bourbon Chicken

In freezer bag:
-       2-3 chicken breasts
-       the rest of the diced onion
-       all the minced garlic
-       1 cup of honey
-       ½ cup of soy sauce
-       ¼ cup of ketchup
-       2 tbsp olive oil
-       1/3 tsp red pepper flakes
-       salt and pepper

Cook:
-       On low for 3-4 hours
-       When finished cooking, remove chicken from crock pot and slice into strips.
-       In a small bowl, combine 1 tbsp cornstarch with 1 tbsp water and pour into the sauce remaining into the crock pot to thicken. Repeat if not thick enough.
-       Place the chicken back in the sauce and stir to re-coat.

Serving ideas:
-       Over rice
-       Sprinkle sesame seeds on top


Recipe 5: Lemon Pepper Chicken

In freezer bag:
-       2-3 chicken breasts
-       ¼ cup olive oil
-       3 tbsp lemon juice
-       salt and pepper

Cook:
-       On low 3-6 hours

Serving ideas:
-       With asparagus
-       With rice pilaf
-       With couscous
-       With qunioa


Recipe 6: Orange Chicken

In freezer bag:
-       2-3 chicken breasts
-       2 cups baby carrots
-       1 tsp garlic powder
-       8 oz orange juice concentrate
-       salt and pepper

Cook:
-       On low 3-4 hours

Serving ideas:
-       Over rice
-       With frozen sugar snap peas