We’ve all heard it over and over (and over and over) again: it’s so
important for people living with RA to exercise. Physical fitness can be
extremely useful in managing many of the symptoms that come with RA,
including fatigue. But does anyone else think this advice is easier to
hear than actually follow?
Showing posts with label Fatigue. Show all posts
Showing posts with label Fatigue. Show all posts
Wednesday, February 21, 2018
Monday, July 24, 2017
The Importance of Addressing Pain and Fatigue
A new study suggests that it might be worthwhile for doctors to monitor
and address pain and fatigue in addition to and independently of disease
activity. Hopefully, more research will continue to take a
patient-centric approach to understanding the ways RA truly impacts us.
Saturday, May 27, 2017
Misconceptions About Living With RA
May is Arthritis Awareness Month - so I've contributed to this RheumatoidArthritis.net video discussing common RA misconceptions
What misconceptions about living with RA have you encountered?
Labels:
Discouraged,
Fatigue,
Hope From Strangers,
Invisible Illness
Tuesday, April 18, 2017
May I Have A Prescription for Patience, Please?
Living with a chronic illness necessarily means that you aren’t a
stranger to doctors, nurses, needles, X-rays, procedures, etc. However,
simply having an abundance of experience doesn’t mean it is always easy
to interact with medical providers – especially in situations where you
don’t feel well.
Labels:
Anxiety,
Blood Pressure,
Discouraged,
Fatigue,
Invisible Illness
Wednesday, March 1, 2017
“Supporting Fatigue” at the 2016 American College of Rheumatology Annual Meeting
While a 2004 study showed that 65% of patients prioritized fatigue, Dr.
Hewlett pointed out that doctors too often focus on pain and ignore
fatigue. This year a session focusing specifically on the issue of
fatigue and how doctors can help their patients better manage it was
hosted at the American College of Rheumatology Annual Meeting.
Labels:
Discouraged,
Fatigue,
Hope From Strangers,
Invisible Illness
Wednesday, October 12, 2016
How to Manage Rheumatoid Arthritis and Stress
Although researchers still don’t fully understand the precise connection, a 2010 review of 16 studies published in the journal Arthritis Research & Therapy concluded
that there is enough evidence to support the belief that stress likely
plays a role in triggering RA flares or worsening RA symptoms. This is
certainly something I can confirm from personal experience!
Being stressed seems to trigger an endless cycle: stress makes you
feel crummy, which generates additional stress, which only makes you
feel worse. For this reason, it is especially important that people
living with RA have tools for dealing with stress.
Labels:
Anxiety,
Fatigue,
NewLifeOutlook,
Sleep,
Stress
Wednesday, May 11, 2016
Our Favorite Apps!
I’ve been threatening to do this for a long time and I
finally got around to it! Here’s a list of our favorite apps – because guess
what? Sometimes mama needs a break!!!
A good many of these apps are free! As for the ones
that cost a few dollars, we certainly didn’t pay for all of them. Many we got
for free through Starbucks or AppGratis or similar promotions. But, in general, I think most of these are worth the
money OR they offer enough of a free demo to be entertaining for free.
[NOTE: Every app marked ** can be played on the first
generation iPad with the old operating system!!]
For babies:
·
I
Hear Ewe – by Claireware Software (free) **
·
Laugh
& Learn Animal Sounds – by Fisher-Price (free) **
·
Music
Box – by Sago Mini ($2.99) **
For toddlers:
·
Lego
Duplo Train – by Lego Systems (free)
·
Lego
Duplo Food – by Lego Systems (free)
·
Starfall
ABCs – by Starfall Education (free) **
·
ABC
Train – by Knox Apps (free) **
·
Friends
– by Sago Mini (free) **
·
Lotto
matching – by Tiny Hands (first few levels free; unlock $3.99) **
·
Towers
1 – by Tiny Hands (first few levels free; unlock $3.99) **
·
Towers
2 – by Tiny Hands (first few levels free; unlock $3.99) **
·
First
Words 1 – by Tiny Hands (first few levels free; unlock $3.99) **
·
First
Words 2 – by Tiny Hands (first few levels free; unlock $3.99) **
·
What’s
my Pair 1 – by Tiny Hands (first few levels free; unlock $3.99) **
·
What’s
my Pair 2 – by Tiny Hands (first few levels free; unlock $3.99) **
·
Sorting
1 – by Tiny Hands (first few levels free; unlock $3.99) **
·
Sorting
2 – by Tiny Hands (first few levels free; unlock $3.99) **
·
Trucks
– by Duck Duck Moose ($2.99) **
·
Pepi Tree –
by Pepi Play ($2.99) **
·
Interactive
Alphabet – by Piikea St. ($2.99) **
·
Endless
Alphabet – by Originator Inc. ($6.99) **
For preschoolers :
·
Starfall
Free – by Starfall Education (free) **
·
Toca
Kitchen Monsters – by Toca Boca (free) **
·
First
Words Sampler – by Learning Touch (free) **
·
Little
Matchups ABC – by Innovative Investments (free) **
·
Geoboard
– by Clarity Innovations (free)
·
Goodnight
Safari – Polk Street Press (free)
·
Connect
the dots – by Tiny Hands (first few levels free; unlock $2.99) **
·
Sorting
3 – by Tiny Hands (first few levels free; unlock $3.99) **
·
What's
my Pair 3 – by Tiny Hands (first few levels free; unlock $3.99) **
·
Town
Center – by Tiny Hands (first few levels free; unlock $3.99) **
·
Raccoon
Treehouse – by Tiny Hands (first few levels free; unlock $4.99) **
·
Endless
Reader – by Originator (first few levels free; starter pack $5.99) **
·
Endless
123 – by Originator (first few levels free; starter pack $6.99) **
·
Endless
Wordplay – by Originator (first few levels free; starter pack $6.99)
·
Little
Writer – by Innovative Mobile Apps ($0.99) **
·
Build
A Truck – by Duck Duck Moose ($1.99) **
·
Monkey
Preschool Lunchbox ($1.99) **
·
More
Trucks – by Duck Duck Moose ($2.99) **
·
Toca Life: Town – by Toca
Boca ($2.99) **
·
Toca
Kitchen – by Toca Boca ($2.99) **
·
ABC Food – by
Peapod Labs ($2.99) **
·
Easy
Music – by Edoki Academy ($3.99)
·
Green
Eggs and Ham – By Oceanhouse Media ($3.99)
·
First
Words Delux – by Learning Touch ($4.99)
Any Age:
·
Talking
Baby Hippo – by Outfit7 Limited (free) **
·
Kids
Doodle – by Bejoy Mobile (free) **
·
Fireworks
Arcade – by Big Duck Games (free)
·
Draw
with Stars –by L’Escapadou (free)
·
Balls – by iotic
(free)
·
BoomKLAKers
– by Funky Bots ($1.99) **
·
Tayasyi
Tangram – by Tayasui.com ($1.99)
·
Petting
Zoo – Animal Animations – By Fox and Sheep ($2.99) **
Labels:
Fatigue,
Mom Thoughts!,
My Amazing Little Family,
Parenting
Tuesday, May 10, 2016
What Exactly is Arthritis? Let’s Set The Record Straight!
May is arthritis awareness month - the perfect time to set the record straight that the word arthritis is used to refer to more than 100 different
diseases and conditions that destroy joints, bones, muscles, cartilage,
and other tissue.
Monday, March 28, 2016
How to Improve Intimacy with Chronic Illness
If your health has had a negative impact on your sex life, you are not
alone. Many factors can impact intimacy – such as pain, fatigue, mood,
body image, and more.
Check out my newest guest post for Mango Health! I was very excited that Mango Health was willing to let me cover this subject - one that is so rarely discussed but can have such a major impact on our quality of life!
Tuesday, January 26, 2016
Six Chicken Freezer Crockpot Meals
Being a mom is hectic. Living with a chronic illness is exhausting. When you combine the two, sometimes the idea of getting dinner on the table in the evening feels monumental. Those are the days where I've grown to love my deep freezer and my crockpot. On a day when I am feeling decent and have a bit of extra energy, I'll prepare and freeze a batch of meals. Then, on days when I'm short on energy or need a break from cooking, all I have to do is pop the meal in the crockpot and dinner is ready!
If you haven't tried freezer/crockpot cooking yet, I highly recommend it and I can offer you a simple starting point. A good friend of mine is about to have her second baby, but since we live in different states I couldn't help her prep food before the baby's arrival. Instead, I wrote up this shopping list and instructions to make it as easy as humanly possible to get six different chicken crockpot meals prepared and frozen. Now my friend will have these meals on hand for after her baby is born!
While these meals do require you to prepare rice or noodles and possibly a steamed veggie on the day you serve it, that is a lot less effort than preparing a whole meal! And the glorious part of this particular batch cook is that it is really simple and streamlined - after I got all the ingredients it took me less than 40 minutes to prep six different meals, despite arthritis hands during chopping! I thought some of you might also be interested in trying it, so I'm sharing the shopping list and instructions below. You could always double it and end up with 12 meals too!
Also (and here's an organized nerd alert here, guys!) I keep a list of what I currently have in my freezer on my phone - so that anytime I'm trying to figure out what to do for dinner I can just check the list. Otherwise stuff would get lost in the freezer forever - especially the chest freezer! I like to include cooking time and serving suggestions right on the list, so I always know how much effort my choice will take in advance.
Also (and here's an organized nerd alert here, guys!) I keep a list of what I currently have in my freezer on my phone - so that anytime I'm trying to figure out what to do for dinner I can just check the list. Otherwise stuff would get lost in the freezer forever - especially the chest freezer! I like to include cooking time and serving suggestions right on the list, so I always know how much effort my choice will take in advance.
Six Chicken Freezer Crockpot Meals
Shopping List:
Meat:
- 12-18
boneless skinless chicken breasts (since 2 big breasts is generally enough to feed my family, the six-pack of chicken breasts they carry at Costco was perfect for this batch cook!)
Dairy:
- cream
cheese (8 oz)
Produce:
- 2
red bell peppers
- 1
orange bell pepper
- 2
sweet onions
- 1
zucchini
- baby
carrots (2 cups)
- 2
cloves of garlic
- lemon
juice
Baking Goods:
- cornstarch
(1-2 tbsp)
- white
sugar (1/4 cup)
Canned & Jar Goods:
- 1
can large pineapple chunks in pineapple juice
- 1
jar spaghetti sauce
- 1
can cream of chicken soup
- orange
juice concentrate (8 oz)
Oils & Condiments:
- ketchup
(1/4 cup)
- olive
oil (1/2 cup)
- white
vinegar (1/2 cup)
- honey
(1 cup)
- soy
sauce (10 tbsp)
Spices & Seasonings:
- 1
packet dry Italian Seasoning
- Black
pepper
- Garlic
powder
- Red
pepper flakes
- Salt
Directions:
(1) Get
six gallon-sized freezer bags.
(2) Label
each bag with recipe name (and, if you want, cooking instructions).
(3) Trim
any fat off chicken breasts and place 2-3 in each gallon-sized freezer bag.
(4) Chop/dice
produce (zucchini, bell peppers, onions, garlic).
(5) Place
listed ingredients into labeled gallon-sized freezer bag.
(6) Get
out as much air as you can before you seal the bag.
(7) Lay
flat to freeze to save space in freezer (but make sure the outside of the bags are
dry, otherwise they will stick to each other, tear, and then leak).
(8) When
ready to use, thaw in the fridge overnight (place in bowl or crock pot to avoid
any issues with leaking as it thaws).
(9) Individual
cooking times and serving suggestions in each recipe.
Recipe 1: Chicken
Cacciatore:
In freezer bag:
- 2-3
chicken breasts
- all
of the chopped zucchini
- half
of the chopped red bell pepper
- half
of the chopped onion
- 1
jar spaghetti sauce
Cook:
- On
low for 6-8 hours
Serving ideas:
- Over
spaghetti noodles
- Over
baked spaghetti squash
- Over
quinoa
- Over
couscous
Recipe 2: Creamy
Italian Chicken:
In freezer bag:
- 2-3
chicken breasts
- Mix:
8 oz softened cream cheese, cream of chicken soup, dry packet of Italian
seasonings in bowl; then pour over chicken in bag
Cook:
- On
low for 4-6 hours
Serving ideas:
- Over
rice
- Over
quinoa
- With
broccoli, cauliflower, or other steamed vegetable
Recipe 3: Hawaiian
Chicken
In freezer bag:
- 2-3
chicken breasts
- all
of the chopped orange bell pepper
- the
rest of the chopped red bell pepper
- half
of the remaining chopped onion (leave some for the next recipe)
- ½
can large pineapple chunks
- ½
cup pineapple juice
- ¼
cup white sugar
- ½
cup white vinegar
- 1
tsp garlic powder
- 2
tbsp soy sauce
Cook:
- On
low for 4 hours
Serving ideas:
- Over
rice
- With
broccoli or other steamed vegetable
Recipe 4: Honey
Bourbon Chicken
In freezer bag:
- 2-3
chicken breasts
- the
rest of the diced onion
- all
the minced garlic
- 1
cup of honey
- ½
cup of soy sauce
- ¼
cup of ketchup
- 2
tbsp olive oil
- 1/3
tsp red pepper flakes
- salt
and pepper
Cook:
- On
low for 3-4 hours
- When
finished cooking, remove chicken from crock pot and slice into strips.
- In
a small bowl, combine 1 tbsp cornstarch with 1 tbsp water and pour into the
sauce remaining into the crock pot to thicken. Repeat if not thick enough.
- Place
the chicken back in the sauce and stir to re-coat.
Serving ideas:
- Over
rice
- Sprinkle
sesame seeds on top
Recipe 5: Lemon
Pepper Chicken
In freezer bag:
- 2-3
chicken breasts
- ¼
cup olive oil
- 3
tbsp lemon juice
- salt
and pepper
Cook:
- On
low 3-6 hours
Serving ideas:
- With
asparagus
- With
rice pilaf
- With
couscous
- With
qunioa
Recipe 6: Orange
Chicken
In freezer bag:
- 2-3
chicken breasts
- 2
cups baby carrots
- 1
tsp garlic powder
- 8
oz orange juice concentrate
- salt
and pepper
Cook:
- On
low 3-4 hours
Serving ideas:
- Over
rice
- With
frozen sugar snap peas
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