Monday, July 8, 2019

RESEARCH OPPORTUNITY: KickStart30: A 30-Day Intervention for Patients with Rheumatoid Arthritis

I'm a big fan of research aimed at improving the lives of people living with rheumatoid arthritis, so I wanted to share this research opportunity from the University of Texas at Austin:


The purpose of this study, “KickStart30: A 30-Day Intervention for Patients with Rheumatoid Arthritis,” is to explore the efficacy and feasibility of an integrated, prescriptive, and trackable wellness intervention combining five wellness elements including exercise, mindfulness, sleep, social connectedness, and nutrition. Eligible participants include:
  • Adults (18+) interested in improving their overall wellness
  • Received a diagnosis of Rheumatoid Arthritis (RA) from a Rheumatologist
  • Currently taking a biologic medication or a JAK inhibitor for the treatment of RA including one more more of the following: Orencia (intravenous infusion or subcutaneous injection), Humira (subcutaneous injection), Kineret (subcutaneous injection), Cimzia (subcutaneous injection), Enbrel (subcutaneous injection), Simponi (subcutaneous injection), Simponi Aria (intravenous infusion), Remicade (intravenous infusion), Kevzara (subcutaneous injection), Rituxan (intravenous infusion), Actemra (intravenous infusion or subcutaneous injection), Olumiant (oral administration), Xeljanz (oral administration)
  • Must not be pregnant or plan to get pregnant during the 30-day study
  • English-speaking
  • Must have access to a reliable Internet-enabled computer
  • Must possess basic computer skills
The study involves participating in a 30-day integrated, prescriptive, trackable wellness intervention,
which includes five wellness elements: exercise, mindfulness, sleep, social connectedness, and nutrition. Additional program requirements include:
  • Implementing 5 wellness interventions daily during the 30-day study
  • Documenting daily online adherence
  • Completing daily HERO (happiness, enthusiasm, resilience, and optimism) exercises to improve your mental wellness
  • Completing online program forms prior to beginning the program and again at 30-days upon completion of the study
All information collected will be kept confidential. Participation is completely voluntary and can be
discontinued at any time without repercussion. There are minimal risks to participating in this study.

Potential benefits that participants may expect from this study include no-cost wellness
information/practices for both physical and mental wellbeing. You will also help researchers in the
advancement of research regarding wellness as a clinical and community-based intervention.

Researchers: Drs. Saundra Jain and Donna Rolin
To volunteer or for more information, please contact Study Personnel at 855.266.9222.
Prior to calling, please watch the study overview video:



Tuesday, April 23, 2019

Healthline's Best Rheumatoid Arthritis Blogs of 2019

I'm honored to be selected as one of Healthline's best rheumatoid arthritis blogs of 2019 - alongside some of my favorite people! 

You can check out the full 2019 list here.

Tuesday, April 2, 2019

Brain Fog and RA - What Do Researchers Know?

While "brain fog" isn't a medical term, I've heard anecdotally that many people living with RA have experienced it themselves....As it turns out, there has been some research on this subject.

Wednesday, February 27, 2019

Could a Mummy Hold the Key to An Arthritis Cure?

Scientists are studying a mummy that was discovered in a convent in the town of Guano, Ecuador. They believe that further examination of it could uncover a missing link that allows scientists to better understand the origin and natural history of RA.

Monday, February 11, 2019

Could A Scorpion Take the Sting Out of RA?

Ever since I was first diagnosed with RA, I’ve kept my fingers crossed for scientists to identify new treatments or even to find a cure. From parasitic worms to an electrical implant in the brain to a peptide found only in old world monkeys, I’ve seen RA research take some very interesting paths over the last ten years. And here’s another one:

A group of researchers has found that one of the hundreds of components in scorpion venom can reduce the severity of RA in animal models.

Monday, January 28, 2019

American College of Rheumatology Issues Guidelines for Reproductive Health

In October 2018, the American College of Rheumatology (ACR) presented brand new clinical guidelines on reproductive health. This is very exciting news for patients living with rheumatoid arthritis, particularly women, as it gives our rheumatologists a consistent, peer-reviewed set of recommendations to answer important questions about contraception, fertility, pregnancy, breastfeeding, and menopause.