Friday, March 7, 2014

One Last Appointment

When I was originally diagnosed with RA in 2008, I was a law/grad student at the University of Colorado. At the time I only had student health insurance, so it was an ordinary primary care doctor at campus student health who first diagnosed me with RA. Then I was not given a choice about which specialist I would go see - my insurance simply provided me with a referral to a local rheumatologist, and I followed the instructions I was given. 

Luckily, that particular rheumatologist turned out to be a completely amazing doctor. One who took the time to listen to my concerns and work with me to find a treatment that I was as happy as possible with. And although my insurance has changed several times in the last five and a half years, I have always made the decision to stay with this rheumatologist. In fact, he is the only rheumatologist who has ever treated my RA.

But yesterday we said goodbye.

My husband recently accepted a new job that will require us to make the switch to Kaiser insurance. And, with Kaiser insurance, I will need to see a Kaiser rheumatologist. I will also need to see a Kaiser primary care physician, a Kaiser OB, and OZL (and the new baby) will need to see a Kaiser pediatrician - but these changes don't actually feel that difficult to make. Changing rheumatologists, however, feels a little bit scarier. It reminds me of what things were like in the beginning, when I was full of doubt and confusion. The good news is, with the help of my first rheumatologist (and all of the writing I have done on this blog!), today I do feel more confident in my own abilities to advocate for myself and my own needs. So hopefully I will be able to form an equally good relationship with my new rheumatologist.

In the meantime, I want to thank my first rheumatologist from the bottom of my heart. He has helped me through so much over the past five and half years. He supported me through my diagnosis and during the long and frustrating search for a treatment that worked for me. He listened to my concerns and provided me with resources to help me successfully complete grad school and law school. He always took my opinions into consideration before making recommendations and he (and his staff) provided me with samples of new medications to try so that I could get started right away while waiting for my insurance paperwork to go through. He provided me with advice and support while I planned my wedding and throughout my first pregnancy. He helped me deal with adapting to motherhood while living with RA. And I really don't think I could have done any of this without his support.

And now it's time for our family to move on to the next exciting chapter of our lives! New job! New baby! New doctors! I'll be sure to let you all know how it goes!

Tuesday, March 4, 2014

Hydrocarbon Hucksters: Lessons from Louisiana on Oil, Politics, and Environmental Justice

Some of you may have been following my story long enough to remember that one time that I went to law/grad school and earned myself some fancy degrees. (You know, "that one time," a.k.a. that extremely difficult five-year period of my life in which I got diagnosed with RA right in the middle and struggled find a treatment that worked, retain my identity, and finish what I started. That time.)

In any event, lest you think my degrees currently do nothing but gather dust and cost me monthly student loan payments, I am excited to announce the publication of the second book I have been lucky enough to co-author!! And this time my name is even on the cover!!

This book has nothing to do with the topic of this blog, but it is a big achievement in my life so I wanted to share
Hydrocarbon Hucksters: Lessons from Louisiana on Oil, Politics, and Environmental Justice

Hydrocarbon Hucksters is the saga of the oil industry's takeover of Louisiana--its leaders, its laws, its environment, and, by rechanneling the flow of public information, its voters. It is a chronicle of mindboggling scientific and technical triumphs sharing the same public stew with myths about the "goodness" of oil and bald-faced public lies by politicians and the captains of industry. It is a story of money and power, greed and corruption, jingoism and exploitation, pollution and disease, and the bewilderment and resignation of too many of the powerless. Most importantly, Hydrocarbon Hucksters is a case study of what happens when a state uncritically hands the oil and petrochemical industries everything they desire. Today, Louisiana ranks at or near the bottom of the fifty states on virtually every measure related to the quality of life--income, health, education, environment, public services, public safety, physical infrastructure, and vulnerability to disasters (both natural and man-made). Nor, contrary to the claims of the hydrocarbon sector, has there been much in the way of job creation to offset all of this social grief.

The authors (one a scientist, the other an environmental lawyer) have woven together the science, legal history, economic issues, and national and global contexts of what has happened. Their objective is to raise enough national awareness to prevent other parts of the United States from repeating Louisiana's historical follies. The authors are uncle and niece, a generation apart, who have melded their conclusions from two separate tracks.

Dying to read more? You can totally buy my book on Amazon!!  ~;o)

Monday, March 3, 2014

The RA Pregnancy Chronicles: My Second Pregnancy Begins

The RA Pregnancy Chronicles is a series of posts that share my experiences being pregnant while living with RA. This post was written during Week 4 of my second pregnancy. 

I am excited to share stories from my second pregnancy on RheumatoidArthritis.net. I can’t promise that my story will always be uplifting, but I can promise that it will be honest. And though it may not be an easy task, I can promise that I will show it is possible (& wonderful!) to start a family while living with RA

"At Least It's Not Cancer"

“At least it’s not cancer.” On the one hand, I wholeheartedly agree. On the other hand, I think comments like these unfairly downplay the seriousness of RA & other autoimmune diseases.

Thursday, February 27, 2014

February Articles on Answers.com

You can find a complete list of all the articles I have published on Answers.com by clicking here. Below is a list of the new articles I published in the month of February.

Rheumatoid Arthritis (RA)

Pregnancy

Research & Advocacy

Wednesday, February 19, 2014

How To Talk To Your Partner About Sex

While it may be quite uncomfortable, good communication is critical to sustaining a healthy sex life, particularly when arthritis places additional obstacles on the path to intimacy. If the idea of talking to your partner about sex seems daunting, here are some tips that may help you foster communication with your partner on this very important topic.

Tuesday, February 18, 2014

Exciting News!

APL and I have some exciting news to share! And I'll bet from the picture you can already guess what it is! That's right....I'm pregnant! We are very excited to announce that we are expecting our second baby this summer! 

I've been meaning to write this announcement post for several weeks, ever since I crossed safely into the second trimester. Unfortunately, this pregnancy has been extremely difficult for me so far. I had "morning sickness" when I was pregnant with OZL, and I thought that was bad. Turns out that was extremely mild! I would trade this for that in a millisecond! I have been so very sick with this baby that I had to start taking prescription anti-nausea meds at about week 6.  And really all that did was stop me from vomiting all day every day. I've had major issues in consuming enough nutrients and, unfortunately, I've even lost weight since becoming pregnant.

About two weeks ago I reached a point where I couldn't even keep the anti-nausea medication down. I ended up at the OB's office one morning after throwing up three times before 10am. They gave me another form of the medication that dissolves in my mouth (instead of swallowing a pill). With the help of the new medication and, I hope, the advancing weeks of my pregnancy, I am cautiously starting to feel better. And while I am still having a great deal of difficulty planning or preparing meals for my family, I am doing slightly better with eating food that is put in front of me. I'm not gaining any weight yet but at least I'm not losing any more! And, throughout all this, the best news is that the baby is doing great!

And now that I am starting to feel a tiny bit better I am ready to start sharing my pregnancy experiences with the RA community. It's very important to me to share my experiences because pregnancy is another RA topic that I feel is not addressed nearly as much as it should be - especially considering that such a large percentage of people with RA are women and many of us are still quite young!

When I was ready to get pregnant for the first time I was desperate to find stories of other women managing to survive pregnancy and RA at the same time. Unfortunately, aside from one book (that I had to order all the way from Australia) and one brave blogger (who is now also expecting her second baby!!) I just couldn't seem to find very much good information. This is a gap that I'd really like to help fill if I can. 

I shared stories from my first pregnancy on this blog. This time I am really excited to have the opportunity to share my pregnancy stories on RheumatoidArthritis.net. Not only will that platform allow me to reach a wider audience, but through the search engine optimization work they are doing I may also be able to reach women who are blindly Googling "RA and pregnancy" - like I was before my first baby. So look for my pregnancy stories on the RheumatoidArthritis.net blog, and I will post links here as well.

And wish me luck that I start feeling better soon - because I still have a long way to go!

Thursday, February 13, 2014

Expert Advice For Improving Your Sex Life With RA

Many of us with RA understand exactly how fatigue and pain can make intimacy difficult or unappealing. And we can probably all agree that a strained sex life will eventually take a toll on your relationship as a whole. I have compiled a list of all the useful information and advice about actually improving your sex life when you have RA. 

Tuesday, February 11, 2014

Book Review: “Arthritis, Pregnancy, And The Path To Parenthood” By Suzie Edward May

As soon as I started thinking about getting pregnant for the first time, I immediately started researching how living with RA was going to impact my pregnancy (and my chances of getting pregnant in the first place). I was very happy to find this book!

Saturday, February 1, 2014

January Articles On Answers.com

You can find a complete list of all the articles I have published on Answers.com by clicking here. Below is a list of the new articles I published in the month of January.

About Arthritis

Diet

Product Reviews