Last night I had the interesting realization that I have been feeling extra exhausted almost exactly as long as I have been off prednisone. I left a message with my rhuematologist to see if there was a possibility of those two issues being related. I just got a voicemail reply from him. He said:
Prednisone does tend to give people more energy, especially when it is used to treat an inflammatory disease such as RA. Your energy should improve some over time, if you can be patient. If it's really a problem, you could resume prednisone at 2.5 mg a day.
(a) What do you mean my energy should improve "some"? How much is some? How long should I be patient???
(b) Why on EARTH didn't you mention this potential side effect when we discussed taking me off prednisone? Seems like that possibility might have been relevant to the conversation.
(c) How does starting prednisone again solve ANYTHING??? Doesn't that just delay this exhausted feeling while continuing to make me fat and miserable? How is that sustainable???
[Several loud curse words omitted.]