Traveling is so important to APL and me - and we really love to go camping - so when I first heard that Enbrel needed to be refrigerated, I felt my heart sink. I was really worried that it would make traveling - and especially camping - difficult or impossible.
But it is not impossible!! While I will admit that traveling or camping with Enbrel takes a little more thought and planning, it is totally possible. I have now traveled internationally to China, Australia, and Spain with my Enbrel safely in tow. And I've camped with Enbrel in Australia and all over the U.S.
Obviously you should talk with your doctor about the best methods of traveling with Enbrel. But, from my experience, I'd like to offer what I hope are a few useful pieces of advice about traveling with meds that need to be refrigerated:
Your Transport Container
You should have a little insulated travel cooler specifically for transporting your Enbrel. You can get one for free from Enbrel Support (Call 1-888-436-2735.) In it keep:
- As many doses of Enbrel as you need for your trip
- An ice pack
- Extra ziplock bags (for ice - I'll explain more in a minute)
- Alcohol wipes (for injections)
- I also like to take the box my Enbrel comes in - with my name and prescription information - in case I need to prove that it is medically necessary to the TSA (though that has never happened to me)
Flying with Enbrel
The Enbrel website says you should call your airline in advance to check about flying with Enbrel. I don't recommend this - when I called they had zero idea what I was talking about and couldn't seem to understand why I had called at all. Instead, here is some advice I have gathered through experience:
- ALWAYS carry your Enbrel on the plane - it can freeze in the baggage compartment if you put it in your checked luggage.
- At security, I used to take my Enbrel out and declare it to the TSA (which is what they request) but I don't bother anymore. Most of the time it goes right through security without a problem. Occasionally the solid ice pack will show up on the X-ray and they will want to look at it, but they always give it back. The TSA is required to let you carry medically necessary liquids on the plane, and Enbrel is a prescription.
- For international flights (or flights longer than a few hours):
- When you board the plane, tell the flight attendant you have medicine that needs to be refrigerated and ask if you can put it in the airplane's fridge. I've never had a flight attendant say no to this request. (Though if they do, tell them you will need ice during the flight to keep your medicine cold.)
- Don't just give them the Enbrel - give them the entire little cooler with the ice pack inside. Even if the ice pack melts on a long flight, if it is in the fridge it should stay cold long enough for you to find some ice or another fridge after you get off the plane.
- When they put your Enbrel in the fridge, they usually want to know what seat you are sitting in. I usually attach my boarding pass to the outside of the little cooler.
- Sometimes the flight attendants will bring your Enbrel to you right before the plane lands. If they don't DON'T FORGET YOUR ENBREL ON THE PLANE.
When You Have Access To A Fridge
Most hotel rooms these days have mini-fridges in them, so keeping Enbrel cold once you get there is generally pretty easy. Even if the fridge is a mini-bar, you can put your Enbrel in and take it out when you leave without getting charged anything.
- Make sure the fridge is adjusted properly - cold enough, but not so cold that it will freeze your Enbrel.
- BEWARE of fridges that turn off when you leave the room (I saw this in Spain and China). This is usually true in rooms where you have to insert your room key to turn on the lights. If you can leave an extra key in the room to keep the fridge on when you are gone, that should work.
- If there is no fridge in your room, or the fridge turns off when you leave, or you check out and are leaving your luggage for the day at the hotel, just tell them at the front desk that you have medicine that needs to be refrigerated. In my experience, the hotel has always been more than happy to put my Enbrel in their fridge.
- If you aren't sure you trust the hotel or if there is a language barrier and you aren't sure what got communicated, ask to see the fridge so you can make sure everything will be ok.
When You DON'T Have Access To A Fridge
Don't panic!! Ice works just as well at keeping Enbrel cold!!
- If possible, freeze your ice pack before leaving and use that as long as it is solid.
- When you need ice you already have ziplock bags for it in your carrying case! When using ice I also like to double-bag it and/or put the Enbrel in a ziplock bag too to prevent leaking when the ice inevitably melts.
- You can ask for a small amount of ice anywhere that uses ice - cafe, gas station, coffee shop, bar, hotel. We always offer to pay for the ice, but we have always gotten it for free when we tell the employee that we just need a little bit of ice to keep some medicine cold. In our experience when we hand over a ziplock bag, it gets filled with ice for free.
- REMEMBER: when using ice to keep Enbrel cold, it is important to check on it every couple of hours to see if you need more ice.
- Another option that works especially well for camping or driving is to get a little cooler that is charged through the cigarette lighter in your car (that's what we did in Australia). Just make sure you don't kill your car battery and that the cooler gets cold enough!
And that's all I can think of!! It seems like a lot, but I promise it is really not that bad. I was pretty nervous the first time I traveled with Enbrel, but now it seems like second nature. And we still get to travel. ~;o)