I recently got an email from Suzie Edward May, author of Arthritis, Pregnancy, and the Path to Parenthood. She encouraged me to take 20 minutes out of my day to participate in the first global survey about RA - and if you have RA I want to encourage you to do the same!
Here's what Suzie had to say about it:
Dear Friends,Please take a moment to complete a Rheumatoid Arthritis global survey that is being conducted by the pharmaceutical company, AbbVie.The intention is to gather new information from people living with RA that will be collated and analysed globally as well as locally. The results will help support RA education and advocacy work in the future. Thirty nine countries are participating in 30 languages.Topics cover four broad areas:· Knowledge gaps or disease management – to evaluate the existing consumer knowledge level about RA’s severity and progression and how well they understand how to manage their condition· Effectiveness of current information resources – to determine consumer perceptions on available RA information and education resources, how they access this information and what other types of RA resources they would like to see made available· Quality of life impact – to understand more fully how RA affects individuals physically, mentally, emotionally and professionally· Relationships impact – to explore consumer perspectives on engagement with health professionals, care-givers, family, friends and employers in managing their RA and how the wider communities’ perception of RA impacts on the health consumers mindset.The survey is now live on www.RAJointheFight.com and will close on April 11.Thank you for taking 20 minutes out of your day to support this initiative - the results will hopefully make a positive impact on the lives of those of us living with RA (and potentially other forms of arthritis too).Suzie Edward May
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