Tuesday, September 3, 2013

Planning a Wedding With RA

I am so very behind in updating this blog! We have had visitors, gone camping, had more visitors, and we just returned from a weekend in New York yesterday. And did I mention we did all of this with a one-year-old?!?! Needless to say it has been crazy busy around here lately. And though my body appears to have arrived back in Colorado, I think my brain may still be somewhere in New York. When I locate this "lost luggage" I promise to get some updates posted soon!

In the meantime, I was recently interviewed about planning a wedding with RA for an article at Everyday Health. While I don't think I agree with all of the advice in the article (and honestly I don't think the author did a very good job ironing out conflicting advice) I still thought I would share the article with all of you. 

What do you think? Is the advice useful? What advice would you give to someone planning a wedding with RA?

Thursday, August 29, 2013

August Articles on Answers.com

You can find a complete list of all the articles I have published on Answers.com by clicking here. Below is a list of the new articles I published in the month of August.

Tuesday, August 20, 2013

Busting 5 Myths About Rheumatic Diseases

Monday, August 12, 2013

Guest Post at Life Autoimmune

Not too long ago, I posted the first guest post this blog has ever featured. I was also lucky enough to be invited to write my first guest post on Stacey's blog, Life Autoimmune. I hope you'll check out my guest post and Stacey's amazing blog, where she shares her story about living with her own RA and her daughter Jordon's JA.

Wednesday, August 7, 2013

The RA "F" Word

I knew on Saturday. We were in the car when I felt a small twinge of pain in the joint on my right thumb. Though I didn't want it to be true, somehow I knew immediately that it wasn't an isolated, random pain. 

And, unfortunately, I was right. By the end of that evening both joints in that thumb hurt. By the next day the left thumb hurt too. Then the other joints on both my hands became inflamed. And now the pain has begun to travel into my wrists. It's the RA "F" Word: a flare.

It was in March when I got prednisone injections in both of my hands to keep my RA at bay. At the time my rheumatologist told me the relief from the injections would last two to three months, so I guess I ought to feel lucky that I made it four. 

Now I suppose there's nothing left to do but wait a few more days so that I can determine whether this flare is contained to my hands or whether other parts of my body will be affected as well. Then I guess I will make an appointment with my rheumatolgist and decide what to do next. Because I need to stay as pain-free and functional as possible - not only for my sake but also for my sweet baby boy.

Tuesday, August 6, 2013

Babysitting For A Cure

In September, APL will be participating for the second time in the California Coast Classic. He'll be riding his bike 525 miles from San Francisco to Los Angeles to raise funds and awareness for the Arthritis Foundation. This year he will be joined on the ride by his brother, his brother's girlfriend (who suffers from ankylosing spondylitis, an arthritis of the spine) and their cousin (who also rode two days of the ride last year). With OZL safely in the hands of his grandparents, I will also be volunteering as support staff along the ride this year.

Last year, we had a very compelling story to tell about the difficulties of living with RA while pregnant and on bed rest, my struggles after OZL's birth, and my decision to stop breastfeeding so I could go back on my RA meds just before the ride. Our friends, family members, and co-workers gave generously, and we were able to raise $2,450 more than the $3,000 minimum we committed to. 

But while we are extremely appreciative of the generosity of our friends and family, we really don't want to depend on them to give to our cause all the time. Especially here in Colorado, where most of our friends are young parents with babies and no one has a lot of money. So this year we have been looking for a company who might be willing to sponsor all or part of Team Z, but although we have contacted more than two dozen companies we haven't had any luck yet. 

And that's when the idea of "donate a date night" hit us. While some people run or race for the cure we've been babysitting for a cure! In exchange for a donation to the Arthritis Foundation we've been watching our friends' babies so that they can go out on a date. So far we've enabled our friends to go to a movie, an anniversary dinner, and rock climbing - all for arthritis! Everybody wins!

APL is still about $1,200 short of his minimum for this year, and other members of Team Z need to raise even more than that. So hopefully we'll get a few more takers on our "donate a date night" idea! In the meantime if you are interested in making even a small donation to Team Z we would very much appreciate it! Every little bit, no matter how small, helps us reach our goal and raise awareness and research funds for the 50 million adults and 300,000 children who must live every day with arthritis.

Sunday, August 4, 2013

Health Insurance Hieroglyphics

It's the open enrollment period for APL's work - that lovely time of year when we spend hours beating our heads against the wall in the hopes that it will help us understand the hieroglyphics of insurance plan options (newsflash: it doesn't). We're never quite sure how to pick the plan that has the best coverage at the best price. What kind of monthly payment can we afford? How high of a deductible do we want? Can you tell if there's a co-pay? How much is the co-pay? What if I need to see a specialist? How much is covered after the deductible is met? What is covered before the deductible is met? Will my enbrel be covered? What if one of us needs to be hospitalized?

The information provided by the insurance companies does virtually nothing to help us figure it all out. Why do they have to make it so crazy complicated?!?! We did, however, find this video that at least clearly explains the difference between an HMO, PPO, and HDHP plan. We found it pretty useful to have this straightforward explanation so I thought I'd share the video here.  

Best of luck to everyone in deciphering the crazy hieroglyphics of health insurance!!

20 Best Rheumatoid Arthritis Blogs of 2013

For the second year in a row this blog has been selected by Healthline as one of the top rheumatoid arthritis blogs on the web. I'm truly honored to be part of such an awesome community of bloggers!

Friday, August 2, 2013

The Faces of Arthritis

Wednesday, July 31, 2013

Working Mom Guilt

I guess I am a "stay-at-home" mom in that I don't leave the house to go to an office or job every day. However, in order to make our family finances work out, I do have to contribute a paycheck. This means that, though I am physically at home, I do have work part time. I work primarily as a writer (I have my second book coming out in February and I write monthly for Answers.com) and I also do some legal consultation for my father's ADR practice (alternative dispute resolution). I am also very excited about another writing opportunity I have recently been offered (more on that another time).

However, all these jobs require me to spend time in front of my computer, concentrating. And, as you can probably imagine, as the sole caregiver of a seriously rambunctious one-year-old it really isn't easy to find uninterrupted time to work. I've known from the start that I would need help to get my work done, so when OZL was about three months old I hired a local college student to come for a couple of hours twice a week so I could write. She is an amazing nanny - plays with him, sings to him, washes his bottles for me - and OZL screams in happiness every time he sees her. But lately it has been getting to the point where I feel like I don't even have time to make myself a cup of tea while she is here. I need every minute she is here to get work done, and even then I can't finish it all. And unfortunately, as a busy student, she can't commit more hours. This has left me working furiously during all of OZL's naps, which means I later find myself trying to distract OZL while I fold the laundry and unload the dishwasher instead of taking him to the park or reading him a story like a real stay-at-home mom would. And I never have any time to myself to rest, and the exhaustion is wearing on me and making my RA flare. It isn't good.

So we've been thinking about enrolling OZL in a preschool program two days a week so that I can have solid hours to get my work done. This will also give me days where hopefully I can focus more on OZL. However, putting OZL in day care is still a difficult, guilt-ridden decision. Because technically I can stay home with him full time - but not the way I would want to.

That's why I contacted fellow blogger Lana for her perspective. I've never featured a guest post on this blog before, but since Lana is a working mother who also lives with RA and fibromyalgia, I thought she might have some words of wisdom to share with me (and you!) So here it is, my first ever guest post:
Working Mom Guilt…I wouldn’t be a good mother without it

I am a working mother and that is all I have ever been. Being a stay-at-home mom was never an option for me.  I have been a working mother for fourteen years now and I can tell you that the guilt doesn’t get easier.

Every mother who works outside of the home feels guilt over not being home during the day to take care of a small child, staying home with a sick child, taking a child to school in the morning or helping out with homework after school.  The irony is that the guilt would still be there even if you arranged your schedule to work from home because you will feel guilty about spending hours focused on your work. The reality is that no matter how many hours you work, your kids will be just fine and so will you.  

There is not a mother out there who doesn’t wish she could just stay home with her children.  I understand that dropping your child off to daycare for eight plus hours a day can take a toll and for most of us, that burden is even greater because of the expectations that society and media have portrayed of working mothers. Because there is so much negativity about working mothers and their children, many of us feel like terrible mothers. However, research disputes anything portrayed by the media or perceived by society. In fact, a 2005 study out of the University of Texas found no evidence to show that children of working mothers suffered any emotional harm from being away from their mothers.  

The University of Texas study found out some other interesting facts as well.  Their research showed that working mothers spent more time with their children on days off and spent less time on household chores and leisure activities, this compared to stay-at-home moms. Moreover, most working mothers found that the quality of time spent with their children was far more important than the amount of time.  As far as the effect on children, infant development was not delayed because a mother worked outside the house and the researchers found no difference in social behavior, language development, or cognitive ability whether mothers worked or not.  

There is simply no evidence that suggests that our children are harmed by us working outside the home or that they are less intelligent or that they misbehave more because they are away from us.  Therefore, there is nothing to justify our guilt or the ill-informed attitudes of society and the media. 
As a working mother of many years, I am very familiar with the guilt and the stereotypes. And all these years of working outside the home, it doesn’t get easier but I don’t have another choice.  What I do have a choice in is taking comfort in knowing that I am not alone in how I feel.  Further, I know that my kids are doing just fine and they are not affected in any negative ways by my career.  The guilt will always be there because if wasn’t, I wouldn’t be a good mother. 

I want to thank Mariah for the opportunity to share a guest post at her blog.  I know that this is topic that many of you working mothers struggle with as you work or as you make a decision whether to return to work. I hope that you will check out my blog, Living Life As I See Fit.  -Lana